By Grace Jones | posted on October 5, 2017
DEDICATED grandmother Margaret Morton is due to arrive in Albany today after completing the grueling Munda Biddi Trail to raise money and awareness for children with rare lung diseases.
Ms Morton’s three-year-old granddaughter Charli was diagnosed with Childhood Interstitial Diffuse Lung Disease (CHILD) at 12 months of age.
CHILD makes it hard for Charli’s lungs to absorb oxygen and has had a huge impact on her and her family, with doctors unable to provide a clear treatment plan.
So far, Ms Morton has been able to raise more than $16,000, surpassing her goal of $15,000.
“Charli is constantly hooked to an oxygen tank, and normal everyday activities, like going to the park, are a challenge,” she said.
“It has impacted her growth significantly, and makes basic activities more complex and physically demanding.
“It’s amazing to watch her shine brightly through it all and that’s my main motivation.”
Lung Foundation Australia CEO Heather Allen said that access to information, support, treatment and research for families is still very limited.
“The diagnosis of a rare lung disease is one of ongoing uncertainty,” she said.
“Without research and the proper support framework in place, these families are isolated and left feeling helpless.
“Lung Foundation Australia is working to raise public and political awareness and funding to establish a dedicated support service through the Young Lungs Program.
“The program will help parents through the common issues they face when their child is living with a rare lung disease.”
Ms Morton’s fundraising page is still open to donations, if you’d like to donate for the cause you can visit www.give.everydayhero.com/au/nanny-s-ride-for-child.
